Emma was diagnosed with a terminal brain tumor 3 months after birth. Doctors stated that she would not live to see age one and that we should enjoy what little time we have. As you can imagine we were shocked. Our family joined together leaning on God’s help. Only He knows how many days one actually has.
Amazingly Emma has been beating the odds. In her first year, Emma did decline, losing weight each week and fading, however, she never gave up, she enjoyed life each day - laughing, giving invaluable hugs and most of all, her love. It was at this point we knew she was not going to give up the fight and the doctors could be wrong. Today the tumor is still there and as a result has caused blindness, a speech impediment, and her basic mobile skills are lower than kids her age.
Progressing daily she has broken through, learning to walk and improve her communication skills through speech and sign language. She's even learning to read Braille! Emma can get around the house pretty well and can even set herself to the dinner table or come to the front door when we are leaving. It may take her some time, but she is a blessing! It was through divine intervention and intense therapy programs that Emma has been beating the odds.
"When I move my body, when I move my feet
When I open my mouth, then darkness flees!"
As a now precious 16-year-old girl who was never supposed to see her first birthday Emma is a true example to each of us. Recently she had a total hip replacement and a second surgery to help her walk again. In addition, a second hip replace for her right hip is in the process of being scheduled!
Whether you've been a part of this from the beginning or recently, on behalf of our family we want to personally thank you for your kind support and outreach to help Emma. It is because of generous people such as yourself that her family is able to provide the extraordinary medical care and therapy that she requires. We look forward to each new day with Emma and can't wait to share our adventures with you!